Vestibular migraines took me on a loop where I’d think I had found my way out but really it was just the beginning of another cycle. It was like exiting the trail only to find that I was at the beginning of a brand-new trail and I had no idea what that trail held.

Before I broke through the vestibular migraine hold, I felt like I was living behind and viewing my life through a window. This feeling was every moment of every day. My body wasn’t allowing me to fully comprehend my surroundings. I could see but it always felt like I was looking through a window, and sometimes not a very clean one. In the beginning it was terrifying. It’s every moment and it’s a thick glassy window.

I was banging on the window screaming out to the rest of the world and everyone was looking as if to say, “We see you. You look perfectly fine.”

Then I’d yell back, “What’s with the window?!”

“What window are you talking about?”, the world responded.

I’d feel a pang in my heart as it started to sink in. Just because the window was very real for me, in no way meant that the rest of the world could see it. If you have journeyed with a vestibular something, there’s a good chance you know exactly what I’m saying.

[excerpt from Uncovering Bliss]

My symptoms involved dissociative symptoms, which include derealization (feeling disconnected from your environment) and depersonalization (feeling disconnected from your body), repeated dizziness (or vertigo), nausea and vomiting, balance problems, lightheadedness, photophobia (sensitivity to light), visual issues and feeling unsteady.

 

what vestibular migraine attacks felt like.

If you’re behind your window, I can step alongside you and point towards the direction of hope.

vestibular migraine symptoms.

By sharing, it heals the pieces of me that were wounded as I pounded that window with my fists and eventually found the hammer to finish the job.